Research / Survey Opportunities

Agencies, Organizations, Universities and others are often looking for participation of families and professionals for current research and survey projects. Each opportunity listed below has contact information if you would like to participate. Please contact the specific entity that is sponsoring each research/survey opportunity if you would like more information.

Unless otherwise noted, Hands & Voices does not necessarily promote the goals and objectives of listed research/survey opportunities and participants are advised to clarify any questions/concerns prior to participation with contacts listed for each research/survey opportunity.

For information on submitting your project for inclusion on this page please read our Submittal Request Sheet.

DATES NAME OF OPPORTUNITY TARGET POPULATION
August 1st 2022- August 1st 2023 Parents of transition-aged youth with disabilities: Perceptions of involvement in special education and transition planning Nationwide
Aug 12, 2022 - Aug 12, 2023 Family experiences seeking support services for children who are Deaf/ Hard of Hearing (D/HH) with a suspected or confirmed diagnosis of Autism spectrum disorder (ASD) Nationwide
July 11 - Sept 12, 2022 Study on How Deaf and Hard of Hearing Individuals Use Instagram to Connect with the Hearing World Nationwide
Thru December, 2022 Impacts of Manual Parameters on American Sign Language Intelligibility Nationwide
Ongoing Listening and Literacy Among Children With Cochlear Implants Worldwide
Thru 9/28/2022 Parent Perceptions on the Effect of COVID-19 on Pediatric Speech and Hearing Services Nationwide
Thru December 2022 Caregiver Comparison of the Language Use Inventory to the Pragmatics Checklist for Families of Children Who are Deaf or Hard of Hearing Nationwide
Thru December 2024

Neurocognition of Literacy in Children who are Deaf and Hard of Hearing

Nationwide
Ongoing Outcomes and Developmental Data Assistance Center for EHDI Programs (ODDACE “odyssey”) AZ, CO, FL, ID, IL, IN, MA, ME, ND, SD, TN, TX, VT, WI, WY

 

Parent Research / Survey Opportunities

- Descriptions of Studies -


 

 

Parents of transition-aged youth with disabilities: Perceptions of involvement in special education and transition planning

Greetings! I am a doctoral student at the University of California Riverside. I developed a survey to understand parents’ experiences supporting the learning and transition planning of adolescents and young adults in special education. Parents/Guardians are eligible if they have a child between the ages of 14 and 25 and currently on an individualized education program (IEP) or on an IEP in the last year. The survey is available in both English and Spanish. You may take the survey at the following link:

https://ucriverside.az1.qualtrics.com/jfe/form/SV_0JV46dSZNdMXQ8u

[ Download Flyer ]

Eligibility

You are a parent/guardian of a youth between the ages of 14-25. Your child currently has an IEP or had an IEP in the last year. You are 18 years or older and can read English or Spanish.

What the survey will ask

Your involvement in your child’s education and transition planning. Factors that affect your decision to participate in your child’s education. Your perception of your relationship with your child's school and staff. You and your child's demographic information.

Benefits

Participants who complete 90% of the survey may be eligible for a gift card. Please read the consent form for more information. 

Contact: Tyler Womack, MA at twoma002@ucr.edu; School of Education; University of California, Riverside

 

 


Family experiences seeking support services for children who are Deaf/ Hard of Hearing (D/HH) with a suspected or confirmed diagnosis of Autism spectrum disorder (ASD)

 

The purpose of this study is to understand the experiences of family members and caregivers of children who were diagnosed as Deaf/Hard of Hearing in their first year of life and were later suspected or confirmed of having Autism Spectrum Disorder (ASD). With the results of the survey, we hope to understand the how families are currently navigating the systems of care, the types of supports they were able access, barriers to care, and how it has impacted the child’s development and growth. This is an online survey on the topic of navigating healthcare and community support settings for your child/family member who is a child that is Deaf/Hard of Hearing, with a suspected or confirmed diagnosis of Autism. You will complete an online survey that will take up to 30 minutes of your time. No identifiable information will be collected during the study.

Survey Link: https://gsu.qualtrics.com/jfe/form/SV_1yTCLlbSyRXY8Xc

Contact info: Akilah Heggs, PhD (Principal Investigator) at aheggs1@gsu.edu Kristina Ormond, AuD (student investigator) at kormond1@student.gsu.edu.

 

 


 

Study on How Deaf and Hard of Hearing Individuals Use Instagram to Connect with the Hearing World

I am currently looking for research participants that are between the ages of 18-30, have a minimum of a 41 dB hearing loss, live in America, and are frequent Instagram users. The preliminary screening survey is located at https://liberty.co1.qualtrics.com/jfe/form/SV_4MdEQTRqKKoeMzs.

Your participation, if willing, will require you to complete a brief interview on Zoom that will take no more than 1 hour to complete. You will also be asked to download your Instagram data and share the file with the researcher where your Instagram messages and comments will be collected and analyzed. Names and other identifying information will be requested as part of this study, but the information will remain confidential.

Interviews will take place between July 11, 2022 – September 12, 2022, on Mondays – Fridays from 5pm – 9pm Eastern time and Saturdays from 10-4pm Eastern time. If you are interested in continuing to participate in this study, please let me know at your earliest convenience which time works the best for you to schedule an interview.

Kimberly Erskine
PhD Candidate
856-723-3851
Kerskine1@liberty.edu 

 

 

 


Impacts of Manual Parameters on American Sign Language Intelligibility

This study will research how manual parameters impact ASL intelligibility through blurry and laggy videos. To participate, you must be fluent in ASL and 18+ years old. You can complete the study online. After participating, you will receive a $15 gift card as compensation for your time. If you are interested or have any questions, please email tafa8047@colorado.edu. Thank you!

 

 

 


GWU logo

Listening & Literacy Among Children With Cochlear Implants

This study is done completely online.

Anyone who meets participant criteria and is interested can participate.

Little girl reading

This study examines auditory perception factors that might impact literacy development in children with cochlear implants.  There have been auditory perception factors implicated in reading abilities in hearing kids, but not much done in looking at these factors in kids with hearing loss, particularly those with CIs. Families who participate will be compensated.

Participants should meet the following criteria:

- Children age 7-12

- Child’s hearing loss (severe-profound) was detected at or near birth

- Child received at least one cochlear implant prior to the age of 3

- Child relies on spoken English for communication

- Child exhibits no other disabilities

For an overview go here: https://prezi.com/view/w1N9DI5BPOSfKoH6jyzc/

GWcicl logo

Those interested in learning more or participating in this study should contact Dr. James Mahshie at (301)-785-4428 or jmahshie@gwu.edu.

Registration can also be done at https://www.gwu-implant.org/

 

 


Parent Perceptions on the Effect of COVID-19 on Pediatric Speech and Hearing Services

Are you a parent/guardian/care giver of a child who receives services from a speech-language pathologist or hearing healthcare provider? If so, we invite you to participate in a research study conducted by Sarah Allen, AuD, PhD, CCC-A and Charia Hall, AuD, CCC-A both faculty of the UAMS College of Health Professions’ Audiology Department.

The purpose of this study is to understand the experiences parents have had pursuing speech/language and hearing care during the COVID-19 pandemic. The survey only takes 10-15 minutes to complete.

More Info:

Flyer 1

Flyer 2

Survey:

https://redcap.link/h77e258m

Thank you for your consideration,
Sarah Allen, AuD, PhD, CCC-A and Charia Hall, AuD, CCC-A

 

 

 


ISU

Caregiver Comparison of the Language Use Inventory to the Pragmatics Checklist for Families of Children Who are Deaf or Hard of Hearing

Researchers from Idaho State University are conducting a study comparing two methods of assessing the pragmatic, (or social language use) abilities of children who are Deaf or Hard of Hearing between 24-60 months of age. Specifically, this study compares caregivers’ reflections on two assessments (the Pragmatics Checklist & the Language Use Inventory), for pragmatic language skills. Participants from around the country are encouraged to apply for our study as it is completed solely online. In return for their participation and completion of the study, participants will be provided their child’s language use results and will be entered into a raffle for a $50 Amazon gift card.

Who can participate:

Caregivers will be asked to:

Contact Us:

 

 

 


Vanderbilt Logo

Neurocognition of Literacy in Children who are Deaf and Hard of Hearing

Researchers from Vanderbilt University at the Brain Development Lab are conducting a first of its kind study looking at how d/Deaf, hard of hearing, and hearing children’s brains develop reading skill. We are particularly interested in how varying communication modes (spoken English, ASL, or use of both) may change how the brain develops. Participants from around the country are encouraged to apply for our study in Nashville, Tennessee. Travel accommodations are provided to those eligible. Fluent signing members of the lab are available to meet with parents and participants who communicate in American Sign Language.

Who can participate:

What to expect:

Find out if you’re eligible:

Take the 5-minute survey here! https://redcap.link/DHHReadingStudy

Contact Us:

 

 

 


Outcomes and Developmental Data Assistance Center for EHDI Programs (ODDACE “odyssey”)

Director: Allison Sedey, Ph.D.

 

We are excited to announce a project awarded to Dr. Allison Sedey at the University of Colorado-Boulder by the Centers for Disease Control (CDC). The aims of this project are to:

Eligible Participants

All children from 6 months to 5 years of age with permanent hearing loss are eligible to participate. Children whose loss is not permanent (e.g., cases where the hearing loss is solely a result of middle ear fluid) are not eligible. Eligible children may have:

Benefits of Participation

Individual Child and Family Benefits

Program Benefits

If you have questions or are interested in becoming involved in this project, please contact:

Allison Sedey
University of Colorado-Boulder

409 UCB
Boulder, CO  80309
303: 492-0078
Allison.Sedey@Colorado.edu

 or

Hands & Voices Contact:  Janet DesGeorges
303-492-6283
janet @handsandvoices.org

 

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