HomeResearch / Survey Opportunities
Agencies, Organizations, Universities and others are often looking for participation of families and professionals for current research and survey projects. Each opportunity listed below has contact information if you would like to participate. Please contact the specific entity that is sponsoring each research/survey opportunity if you would like more information.
Unless otherwise noted, Hands & Voices does not necessarily promote the goals and objectives of listed research/survey opportunities and participants are advised to clarify any questions/concerns prior to participation with contacts listed for each research/survey opportunity.
For information on submitting your project for inclusion on this page please read our Submittal Request Sheet.
Parent Research / Survey Opportunities
- Descriptions of Studies -
Neurocognition of Literacy in Children who are Deaf and Hard of Hearing
Researchers from Vanderbilt University at the Brain Development Lab are conducting a first of its kind study looking at how d/Deaf, hard of hearing, and hearing children’s brains develop reading skill. We are particularly interested in how varying communication modes (spoken English, ASL, or use of both) may change how the brain develops. Participants from around the country are encouraged to apply for our study in Nashville, Tennessee. Travel accommodations are provided to those eligible. Fluent signing members of the lab are available to meet with parents and participants who communicate in American Sign Language.
Who can participate:
- Children ages 10 – 16 who are d/Deaf, hard of hearing, and hearing
- No metal in the body - includes cochlear implants and bone anchored hearing aids
What to expect:
- A video interview
- Minimum of two sessions including fMRI (functional Magnetic Resonance Imaging)
- Standardized tests with scores provided to parents after participation
- Hearing test
- Travel and food accommodations to participants coming from around the country
- Pictures of your child’s brain
Find out if you’re eligible:
Take the 5-minute survey here! https://redcap.link/DHHReadingStudy
Contact Us:
- Lab email: BrainDevelopmentLaboratory@gmail.com
- Lab PI Dr. James Booth: james.booth@vanderbilt.edu
Barriers and Facilitators of Language Exposure and Development in Deaf and Hard-of-Hearing (DHH) Children with Hearing Parents
This research project is driven by the following goals:
- To identify meaningful information about practical barriers that hearing parents of a Deaf or hard-of-hearing (DHH) child face to early language access in the United States.
- To explore the emotional experience of hearing parents after discovering their child’s hearing loss and how this is associated with their decisions.
- To understand the factors that supported parents during their journey to overcome barriers to language exposure and development.
- To generate questions for future research.
How will this information be used?:
- To help generate information to drive future studies in this field.
- To provide information that will inform medical providers about how to best support DHH children with hearing parents.
- To spark new conversations among this community and the medical field regarding language exposure for DHH children.
Eligibility:
Hearing parents of a Deaf or hard-of-hearing child at least 5 years since the time the child was identified as being Deaf or hard-of-hearing.
Participation Requirements:
- Interviews will be conducted over Zoom or telephone with parents.
- The interviews will last approximately 1 hour.
How to Learn More:
- Contact Sydney Loria at sydney_loria@urmc.rochester.edu
- IRB STUDY00006219 Exemption
Thank you so much in advance for your consideration and support!
Case Study on the Impacts of a Movement Disorder on ASL Production
This case study will research how a movement disorder impacts ASL production. There are 2 requirements for the participant; ASL must be their first language and they must have a diagnosed movement disorder. Examples of diagnosed movement disorders include Cerebellar Ataxia, Parkinson’s disease, Huntington’s disease, etc. The participant will receive a gift card as compensation for their time. If you are interested or have any questions, please email me at tafa8047@colorado.edu. Thank you!
In terms of accepting participants, the dates are contingent on finding a participant. Only looking for one participant, as this is a case study.
Taylor Fahey
Lab Manager
University of Colorado, Boulder – CO Motor Speech Lab
Tafa8047@colorado.edu
Technology-Enhanced Communication for Hearing Parents and Deaf Children
Researchers from the University of Rochester are developing new technologies that enrich sign language environments for Deaf or Hard-of-Hearing (DHH) children. We need help to understand technology preferences from hearing adults learning and teaching American Sign Language (ASL).
How to take part?
Clicking this survey link: https://tinyurl.com/asl-exp-0
What you need to know?
- Must be 18 years of age or older
- The survey takes about 15 to 30 minutes to complete.
- Earn $20 (first 100 participants) or a chance to win a $50 raffle
Contact us at:
- Study email: tips.study.ur@gmail.com
- Study PI Dr. Zhen Bai: zbai@cs.rochester.edu
More Info:
Communication Intervention for Toddlers with Hearing Loss
The Early Intervention Research Group (EIRG) at Northwestern University is conducting a virtual language development study for children with hearing loss and their parents, funded by the National Institute of Deafness and Other Communication Disorders (NIDCD). Infants with bilateral hearing loss younger than 19 months old would be eligible to participate with a parent. Families can use any communication modality. Participation in this study is in addition to other services families may already receive. Parents will receive tips about how to support their child’s language development, reports about their child’s development, compensation for their time (up to $950), and an iPad and equipment to help with virtual visits. Some families may also receive virtual parent coaching to work on communication strategies with their child.
To learn more about your eligibility and the study, you can do any of the following and Laura from the Early Intervention Research Group will be in touch!
- Complete this recruitment survey link
- Text ‘info’ 847-750-3440
- Email ei@northwestern.edu
Profiles of Language and Literacy Acquisition in D/HH Children who use Sign
We are looking for D/HH children who use sign language, ages 4-18, to participate in a research study. We are investigating assessment strategies to identify typical vs. delayed sign language acquisition and learn how they relate to attainment of academic skills. Activities will be done remotely over Zoom.
Who is eligible:
- D/HH children who use sign language at school to learn. There are no restrictions on program philosophy (ASL/English bilingual, Total-Communication, etc.)
- While participants may be learning spoken language as well, sign language should be a primary mode of learning and expression in the classroom.
What participation involves:
- Evaluation over Zoom platform using standardized testing, games, and stories
- Participation will take approximately 3 hours depending on age. You may be asked to schedule more than one session if extended attention to this platform is difficult for your child
- Parent questionnaires
What is needed:
- Internet connection with access to Zoom
- Zoom navigation including using a mouse to make selections on a screen. (A caregiver may support the Zoom navigation and use, but should not help with responses)
What you will get for participating:
- $20/hour of participation (up to $60 total provided as an Amazon gift card at end of participation)
- Research report including performance on select standardized measures and profile of language use
How to participate:
- Contact James McCann at james.mccann @gallaudet.edu
- This research has been approved by the Gallaudet Institutional Review Board (IRB) and supported by the Office of Research Support and International Affairs at Gallaudet University
How do little ears with hearing loss hear?
What is the purpose of the study?
The purpose of the study is to identify neural factors that influence hearing aid benefit in children with hearing loss. Specifically, the study will use brain waves (EEG) to measure how well a child hears through his/her hearing aids. Using brain waves could help identify children who have difficulty hearing speech through hearing aids earlier than routine hearing tests and therefore help improve clinical care.
Who is eligible? 5 to 17 year old children with permanent (sensorineural) hearing loss in one or both ears. Children with hearing aids and/or one cochlear implant are eligible. Children with two cochlear implants are not eligible.
What does participation involve?
- Attending 1-2 test sessions at the Waisman Center, University of Wisconsin, Madison, WI
- Non-invasive clinically used procedures:
- Routine hearing test
- Watching a video while speech sounds are played in one ear and brain waves are measured
- We will make custom ear molds, if not available
What can I expect for my participation?
- $10/hour compensation
- Travel reimbursement (if driving >7 miles)
- Small prizes throughout test sessions
- Free parking, flexible scheduling, snacks, and beverages
Contact if you have any questions or are interested in participating:
Name: Emma McGrath
Email: childhearing@waisman.wisc.edu
Phone: 608-263-2697
Pregnancy Outcomes and Experiences among Deaf and Hard of Hearing Women
The Lurie Institute for Disability Policy at Brandeis University’s Heller School for Social Policy and Management and the University of Michigan Department of Family Medicine are currently studying pregnancy outcomes and experiences in women with a hearing loss. Our team of researchers recently launched a new online survey for Deaf and hard of hearing mothers who have given birth in the last 10 years. The goal of this survey is to help us understand what may be driving the increased risk for adverse birth outcomes and improve pregnancy care for Deaf and hard of hearing women.
If you, or anyone you know who might be interested in taking the survey (available in ASL, English or Spanish), please follow this link:
https://sardiprogram.com/DeafPregnancyOutcomes/
Download Flyer - Aqui en espanol
Families & Hearing Study
Description:
The enormous variability in developmental outcomes of children with hearing loss is a significant clinical problem. Research efforts to account for individual differences that focus almost exclusively on hearing loss- or child-related factors are a critical barrier to progress in the field of pediatric audiology. In this 5-year project (funded by the NIH-NIDCD #DC014956), we are examining the influence of family dynamics on spoken language and executive function outcomes in children with hearing loss.
Who we are recruiting and what is involved:
The Developmental Speech Lab at The Ohio State University and the DeVault Otologic Research Lab at the Indiana University School of Medicine are jointly recruiting families of children age 3-8 years, who have an English-speaking parent and who wear hearing aids or cochlear implants OR have typical hearing and language development.
Help us learn more about the contribution of family environment to developmental outcomes in children.
Caregivers complete questionnaires. Caregivers and children participate in games and exercises involving language and thinking. All sessions happen in the home with two clinical researchers from Ohio State or the Indiana University School of Medicine. Families participate in 3 sessions over the next 2 years, at their convenience.
Participants receive up to $625 in gift cards.
For more information in or near Ohio, contact The Developmental Speech lab at 614-688-2235 or devspech_lab@osu.edu
For more information in or near Indiana, contact the DeVault Otologic Research Lab at 317-274-4915 or devinfo@iupui.edu
Parent Child Interaction therapy for parents and deaf children
- Do you have concerns about your child’s behavior?
- Do you feel that you and your child could improve on communication?
- Are you a parent with a deaf child?
- Is your child between the ages of 3 to 6 years?
PCIT is an empirically-supported treatment for young children with emotional and behavioral disorders that focus on improving the quality of the parent-child relationship. Treatment lasts a minimum of 12 weeks.
If you are interested in learning more about PCIT to see if your family qualifies please contact pcit@gallaudet.edu
These services will be offered at no charge to families who are willing to commit to the program. The sessions are held weekly at Gallaudet University and are supervised by licensed psychologist.
This research has been approved by Gallaudet University’s Institutional Review Board. If you would like to receive PCIT services for you and your family, please contact me us at pcit@gallaudet.edu.
The George Washington University Cochlear Implant Communication Lab
Washington, D.C.
Participants needed By George Washington University Researchers
Prosody & Voice Characteristics of
Children Using Cochlear Implants
Hello! We are researchers from the George Washington University Cochlear Implant Communication Lab located in Washington, D.C. The goal of our research is to better understand how young, deaf children with cochlear implants and/or hearing aids develop their speaking and listening abilities. We are currently obtaining data on both hearing children and those with cochlear implants. Our research will investigate characteristics of language, sound production, voice, rhythm, and inflections during various speaking tasks.
Who is eligible for this research?
We are looking for participants with normal hearing, hearing aids, or cochlear implants who exhibit reliance on spoken English in the home and who meet the following criteria:
- Are 4 to 8 years old
- Have no motor or cognitive difficulties that would affect development
- Are located in the Greater Washington, D.C. area, including Northern VA and MD
- For those who are deaf or hard of hearing:
- Are profoundly deaf with the deafness detected at or near birth
- Have received their first implant or hearing aid prior to 36 months of age
What is involved if my child participates?
- Your child will be involved in a number of tasks aimed at sampling their speech, listening, and language abilities. These include standardized testing, computerized listening games, and play activities aimed at sampling the child’s language skills.
- Participation in tasks will require 1 to 2 visits of 60 to 90 minutes each.
Following completion of data collection:
- You will receive $100 to cover transportation, parking and time involved.
- Your child will receive an educational toy following each session.
- Results of standardized testing will be shared with the parents.
If you have questions or are interested in participating in this study please contact:
James Mahshie, Ph.D.
Professor, George Washington University
Sangsook Choi, Ph.D.
Researcher
2115 G St., NW
Washington, DC 20052
(202) 994-3195 or email cistudy@gwu.edu
Study: Binaural Pitch Fusion
in Children with Cochlear Implants and Hearing Aids
Portland, Oregon
The goal of our research is to understand how children who wear hearing aids, cochlear implants, or a hearing aid and a cochlear implant combine sounds between the two ears, and how this may explain some of the variability in speech and music perception abilities. We are also studying how age and development in children affect how sounds are combined between the ears.
Your child may be eligible to participate if he/she:
- Is between 6-8 years of age
- Has a moderate to profound sensorineural hearing loss in both ears, and:
- Wears hearing aids in both ears, or
- Wears a hearing aid in one ear and a cochlear implant in the other ear, or
- Wears cochlear implants in both ears
- Has no motor or cognitive difficulties that would impact testing
- Resides in the western U.S., including WA, OR, CA, ID, NV, AZ and UT.
What is involved if my child participates?
- Your child will be asked to listen to sounds and words, and respond by pressing the appropriate button on a computer touch screen.
- Your child will receive stickers, prizes, and other motivators during study participation. They will be able to take breaks during testing.
- The time needed to complete the testing each year is a total of 5-6 hours, which can be divided into up to four shorter sessions of 1-2.5 hours per session.
- Your child would return for testing once a year for five years.
Participants will receive:
Your child will be paid $15-$25 per hour for the study, plus travel and overnight costs, as applicable. More information about the study is available online at http://www.ohsu.edu/cihalab.
If your child would like to participate in this study or you would like more information, please contact:
Lina A.J. Reiss, Ph.D.
Principal Investigator
reiss@ohsu.edu
(503) 494-2917
This study is funded by the National Institute on Deafness and Other Communication Disorders
The Looking Game:
Children’s Social Play, Language Development, and Eye Contact with Adults.
Is your child deaf or hard of hearing?
Participate in our study!
We are looking for children who are deaf or hard of hearing to play during a Looking-Game Study. We want to learn about children’s social play, language development, and eye contact with adults. Parents can learn about related research discoveries. Children play with researchers and toys. Parents are with their child for the whole visit. Paperwork for parents is in English. Participation is completely voluntary.
Participation Details:
Involves a one time, one hour visit to the University of Washington. Parents will be compensated for travel and parking expenses. The child will receive a thank you gift for participating in our study.
Child may be eligible to participate if:
- He/she is 8-36 months old
- Deaf or hard of hearing
Contact information:
Dawn Hathaway
jalab@uw.edu
(206) 685-2045
Our Flyer: http://ilabs.washington.edu/DHHLookStudy.pdf
Language Development in Children with Hearing Loss Research Project
Your child may be eligible to participate if he/she:
- Is between 6 and 30 months
- Has a hearing loss
Participants will receive:
All children will receive at no cost to you:
- Comprehensive language assessments 4 times over 18 to 30 months
- Monthly speech and language check-ups
- Assessment reports about your child’s language development
- Some money for your time
Participants will be randomly chosen to receive either parent training and monthly language check-ups OR monthly language check-ups only.
Only children assigned to the parent training intervention group will receive:
- Weekly, 1-hour parent training sessions at your home for six months where parents learn language teaching strategies.
Contact:
Megan Roberts, Ph.D., CCC-SLP
megan.roberts1@northwestern.edu
(315) 481-9605
This study is funded by the National Institute on Deafness and Other Communication Disorders
Research Volunteers Needed for
a Study at the University of
Chicago Medical Center!
We are looking for parents of children with hearing loss to participate in a toddler sound environment study
Families who qualify may earn between $350 and $400
Dr. Suskind and her research team at the University of Chicago Medical Center are interested in learning more about toddler sound environments. As part of this study, you will complete recordings of your child’s sound environment and the research team will analyze the recordings using special software. Information gathered will help find ways to improve children’s sound environments and help them reach their potential!
You and your child may qualify if:
- Your child is under 4 ½ years old
- Your child has moderate to profound hearing loss
- Your child uses hearing aid(s), bone-anchored hearing aid, or cochlear implant(s)
- Your family uses spoken language in the home
- You have at least one day per week when you’re home with your child
Call 773-834-8629 to find out if you qualify!
Hands & Voices is pleased to announce it’s Partnership with the:
National Early Childhood Assessment Project (NECAP – “kneecap”)
Principal Investigator: Christine Yoshinaga-Itano, Ph.D.
Project Coordinator: Allison Sedey, Ph.D.
We are excited to announce a new project awarded to Dr. Christine Yoshinaga-Itano at the University of Colorado-Boulder by the Centers for Disease Control (CDC). The aims of this project are to:
- support interested states in implementing a standard assessment battery for children from birth to 4 years of age who are deaf or hard of hearing
- examine the feasibility of creating a national database of early childhood outcomes
- assist states in interpreting assessment results and using these results to drive intervention goals and decisions
- characterize the service delivery models of early intervention programs throughout the United States
- determine early intervention program characteristics that are related to more successful language outcomes for children who are deaf or hard of hearing
Eligible Participants
All children from 6 months to 4 years of age with permanent hearing loss are eligible to participate. Children whose loss is not permanent (e.g., cases where the hearing loss is solely a result of otitis media) are not eligible. Eligible children may have:
- Unilateral or bilateral loss
- Conductive, senori-neural, or mixed hearing loss
- Any degree of permanent hearing loss from mild to profound
- Multiple disabilities or hearing loss only
- English or Spanish as the language of the home
Benefits of Participation
Individual Child and Family Benefits
- Includes parent input in the assessment process
- Measures children’s skills and abilities across a variety of developmental areas
- Allows parents and interventionists to monitor a child’s progress over time and identify potential delays at their onset
- Compares a child’s language abilities to both children who are hearing and other children with hearing loss
- Provides a data-driven approach to making educational programming decisions
- Assists in the generation of IFSP/IEP goals
Program Benefits
- Provides statewide and program-specific accountability data on an annual basis
- Allows programs to examine outcomes across different subgroups of children
- Informs professional personnel preparation needs
- Includes access to normative test data on children who are deaf or hard or hearing
- Results in networking with program directors and EHDI personnel in other states
- Gives states an opportunity to contribute to a national database which will allow us to characterize the language strengths and weaknesses of children with hearing loss and identify factors that are predictive of more successful language outcomes
If you have questions or are interested in becoming involved in this project, please contact:
Allison Sedey
University of Colorado-Boulder
409 UCB
Boulder, CO 80309
303: 492-0078
Allison.Sedey@Colorado.edu
Hands & Voices Contact: Janet DesGeorges
303-492-6283
janet@handsandvoices.org
Science of Learning Center on Visual Languages and Visual Learning (VL2)at Gallaudet University
ANNOUNCING the launch of a longitudinal study of young deaf and hard of hearing children by the Science of Learning Center on Visual Languages and Visual Learning (VL2) at Gallaudet University. The three-year study will involve gathering detailed information and collecting data regarding young deaf and hard of hearing children’s language development, communication, and developmental profiles.
Along with surveys of parents, teachers, and school administrators, a comprehensive battery of assessments administered by trained evaluators from Gallaudet University will be given to deaf and hard of hearing children whose families agree to participate.
VL2 is seeking schools to participate in the study. Parents are encouraged to talk to their school administrators and inform them about the study. Participation is not limited to children who sign; all communication approaches are eligible to participate.
I have set up a blog on the VL2 Public Wiki http://vl2wiki.editme.com/ to provide updates about the project and to answer questions that you may have.
Sharon Baker, Research-Practice Integration Team member
For more information or to register as a partnership school, contact:
Thomas Allen, Ph.D., Principal Investigator
Science of Learning Center on Visual Language and Visual Learning
Gallaudet University SLCC 1200
800 Florida Avenue NE, Washington, DC 20002
Phone: 202-651-5866
Email: VL2@gallaudet.edu
Science of Learning Center on Visual Language and Visual Learning (VL2)
The VL2 Center, located on the campus of Gallaudet University in Washington, DC, is one of six Science of Learning Centers (SLC) funded by the National Science Foundation grant # SBE-0541953. The Center brings together deaf and hearing researchers and educators from national and international institutions to conduct interrelated studies across disciplines. VL2’s primary mission is to gain a greater understanding of the biological, cognitive, linguistic, sociocultural, and pedagogical conditions that influence visual language and visual learning. More information may be found at www.vl2.gallaudet.edu.
SURVEY ON FM USE FOR CHILDREN WITH HEARING LOSS
To our colleagues and to parents of children
with hearing loss
We are trying to understand how many children with hearing loss are using FM systems. If they are using them, at what ages, and in what conditions they are used. We have developed a quick and easy survey that we want to distribute to parents of children with hearing loss (assuming that they will know best how and where their children are using FM's). We would appreciate it if you could share this survey link with the parents of children you work with in the hope that they will be willing to complete the information. Families with more than one child with hearing loss should complete the form separately for each child. We are really grateful for your help
Thank you, Jane Madell and Carol Flexer
https://www.surveymonkey.com/s/FMkids
Jane R. Madell, PhD
Director, Pediatric Audiology Consulting
Jane@JaneMadell.com
Carol Flexer, PhD
Distinguished Professor Emeritus
University of Akron
cflexer@uakron.edu