Research / Survey Opportunities
Agencies, Organizations, Universities and others are often looking for participation of families and professionals for current research and survey projects. Each opportunity listed below has contact information if you would like to participate. Please contact the specific entity that is sponsoring each research/survey opportunity if you would like more information.
Unless otherwise noted, Hands & Voices does not necessarily promote the goals and objectives of listed research/survey opportunities and participants are advised to clarify any questions/concerns prior to participation with contacts listed for each research/survey opportunity.
For information on submitting your project for inclusion on this page please read our Submittal Request Sheet.
Parent Research / Survey Opportunities
- Descriptions of Studies -
CHAMPS-DHH: study on a strengths-based parenting support program for families with children who are Deaf or Hard of Hearing
Researchers from the University of Kentucky and the University of Colorado are enrolling 125 families to help learn if a strengths-based parenting support program, “The Family Check-Up,” is helpful to families with children who are Deaf or Hard of Hearing and use hearing devices. A parent or guardian and their child are involved in the study for up to 1 ½ years and will complete research activities up to two times per year. Families receive up to $150 each year for completing research assessments.
- You are the parent or legal guardian of a 3-6 year old child who is Deaf or Hard of Hearing;
- Your child has worn a hearing aid, cochlear implant, or bone conduction device for at least six months;
- You are at least 18 years old;
- You are able to communicate in English or American Sign Language.
- You live in one of the US states currently eligible for this study (click here for currently eligible states)
What does participation involve?
- You and your child will be a part of the study for up to 1 ½ years.
- All activities will happen remotely (by video or phone call, by online survey, or by mail).
- You will complete a set of questionnaires twice per year. Questions will ask you about you and your child, including your child’s behavior, family relationships, your well-being, and feelings about parenting.
- You and your child will participate in short tasks such as playing, talking, or drawing together once per year.
- Your child will complete speech and language assessments with a member of our research team once per year.
- About half of the families will also participate in virtual one-on-one meetings with a trained parent coach (who is also the parent of a child who is Deaf or Hard of Hearing), focusing on their strengths as a parent and learning about and trying new parenting strategies.
- Complete this form to have a research team member contact you: https://bit.ly/ukchampsdhh
- Email the research team at: firstname.lastname@example.org
- Call the project manager, Julie, at: 859-218-2018
- Learn more at: https://medicine.uky.edu/departments/ent/champs-dhh
You may be eligible to participate if:
- You are at least 18 years old.
- You are the parent or legal guardian of a child between the ages of 3-6 years who is deaf or hard of hearing
- Your child has had a hearing aid or cochlear implant, or bone conduction device for at least the past 6 months (or longer!)
- You are able to communicate in English or American Sign Language
- You live in one of the US states currently eligible for this study (AL, AZ, AR, CA, CO, CT, DE, DC, FL, GA, IL, IN, IA, KY, LA, ME, MI, MN, MT, NE, NV, NH, NM, NY, NC, ND, OH, OR, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, VY).
[ FLYER }
Parent-Child Interaction Therapy Acceptability for Deaf and Hard of Hearing Children
Hello, my name is Savannah Adkins. I am a graduate student at the Marshall University PsyD Program in West Virginia. I am currently conducting research with Dr. Jennifer Kirby on Parent-Child Interaction Therapy (PCIT) for deaf and hard of hearing children. We are asking that parents (18 years or older) of a deaf/hard of hearing child at least two years of age complete a brief, anonymous online survey so we can gather demographic information and their opinion on if this therapy, if appropriately adapted, would be a worthwhile service! This survey is estimated to take 15-20 minutes. Should you have any questions or concerns, please contact me at email@example.com. Thank you for your time! I hope to use your responses to advocate for more accessible treatment options for you and your child
Survey Link: https://marshall.az1.qualtrics.com/jfe/form/SV_cHC9rvIvEcMUO0K
Parent, Guardian, and Family Perceptions of Representation of Hearing Loss in Children’s Literature
Dear Potential Participant,
Our names are Abigail Voyles and Allison Threet, and we are third-year Doctor of Audiology students at the University of Arkansas for Medical Sciences. We are conducting a research study titled, “Parent, Guardian, and Family Perceptions of Representation of Hearing Loss in Children’s Literature” under the supervision of our advisor, Dr. Charia Hall. We would like you to participate in an online survey about your experiences with quality and inclusion in children literature featuring characters with hearing loss. [ flyer ]
PARENTS OF CHILDREN AND ADOLESCENTS WITH HEARING LOSS: ATTITUDES REGARDING HEARING AID COSMETICS
My name is Amber Tilley, an Audiology Doctoral Candidate at Central Michigan University, my advisor Dr. Stacey Lim (Central Michigan University) are collecting information from parents of children with hearing loss that wear hearing devices. We are looking at the opinions and attitudes of parents/guardians of children and adolescents with hearing loss regarding hearing aid cosmetics. Please share this survey with any parents who meet the study’s criteria or colleagues who work with a pediatric population. See below for more details. Thank you!
Dear Potential Participant,
My name is Amber Tilley, and I am an Audiology Doctoral Candidate at Central Michigan University. I am conducting a research study entitled, “Parents of Children and Adolescents with Hearing Loss: Attitudes Regarding Hearing Aid Cosmetics” under the supervision of my advisor, Dr. Stacey R. Lim. I would like to invite you to participate in an online survey via Qualtrics about your child(ren)’s hearing aids.
Requirements for study participation include:
- Parent or guardian of a child or multiple children with a diagnosed hearing loss born after 1995.
Hearing loss can be of any severity or shape (configuration)
- Child must wear a hearing aid or cochlear implant device on one or both ears, or have ordered devices.
- Must live in the United States
I am collecting information about parents/guardians’ attitudes regarding hearing aid cosmetics for their child(ren) with hearing loss. The findings from this study will provide information regarding the attitudes of cosmetic decisions of hearing aids for children with hearing loss from the parental/guardian perspective.
Participation in this study is entirely voluntary. There is no compensation for participating in this study. This questionnaire will take approximately 10-15 minutes to complete.
You can choose to participate or not to participate in this research study. To proceed to the study, please click the link below:
Thank you for your consideration,
Amber Tilley, B.S.
Audiology Doctoral Candidate/Researcher
Central Michigan University
Stacey R. Lim, Au.D., Ph.D., CCC-A
Associate Professor of Audiology
Central Michigan University
Caregiver Experiences in the Implementation of Their Learning in Early Intervention
Attention families of children ages 3-5 with hearing loss!
We want to hear from you!
Was your child diagnosed with hearing loss and you participated in Early Intervention to develop your child's listening and spoken language? Tell our researchers about your experience in Early Intervention! Simply navigate to TINY.ONE/EICHILD and answer a few questions on our survey. It is so easy and only takes a minute! We may contact you with further questions. Your input can help improve Early Intervention services for future families of children with hearing loss. Please help us out today!
[ Download Flyer ]
Family Survey regarding Appropriateness of Early Intervention Services for Hearing Loss in Maryland
This research is designed to understand family experiences and perceptions of early intervention services for children with hearing loss in the state of Maryland. To achieve this, we created a thirty-seven-question online survey that collects numerous information regarding the child’s hearing loss and education/counseling families received from Early Intervention professionals. Participants who complete the survey are eligible to enter an optional raffle to win one of three $100 Visa Gift Cards. Results from the survey can contribute to better understanding how early intervention services are communicating with families and whether family goals are being met.
To participate in this study, you must meet the following criteria:
- Parent or Guardian (over the age of 18) with a child diagnosed with permanent hearing loss
- Your child must have received Early Intervention Services in the State of Maryland
To enter the survey, click on the link below:
Should any additional questions or concerns arise, please feel free to contact the project investigators:
Brisia Gonzalez: firstname.lastname@example.org
Nicole Nguyen: email@example.com
Parents of transition-aged youth with disabilities: Perceptions of involvement in special education and transition planning
Greetings! I am a doctoral student at the University of California Riverside. I developed a survey to understand parents’ experiences supporting the learning and transition planning of adolescents and young adults in special education. Parents/Guardians are eligible if they have a child between the ages of 14 and 25 and currently on an individualized education program (IEP) or on an IEP in the last year. The survey is available in both English and Spanish. You may take the survey at the following link:
[ Download Flyer ]
You are a parent/guardian of a youth between the ages of 14-25. Your child currently has an IEP or had an IEP in the last year. You are 18 years or older and can read English or Spanish.
What the survey will ask
Your involvement in your child’s education and transition planning. Factors that affect your decision to participate in your child’s education. Your perception of your relationship with your child's school and staff. You and your child's demographic information.
Participants who complete 90% of the survey may be eligible for a gift card. Please read the consent form for more information.
Contact: Tyler Womack, MA at firstname.lastname@example.org; School of Education; University of California, Riverside
Family experiences seeking support services for children who are Deaf/ Hard of Hearing (D/HH) with a suspected or confirmed diagnosis of Autism spectrum disorder (ASD)
The purpose of this study is to understand the experiences of family members and caregivers of children who were diagnosed as Deaf/Hard of Hearing in their first year of life and were later suspected or confirmed of having Autism Spectrum Disorder (ASD). With the results of the survey, we hope to understand the how families are currently navigating the systems of care, the types of supports they were able access, barriers to care, and how it has impacted the child’s development and growth. This is an online survey on the topic of navigating healthcare and community support settings for your child/family member who is a child that is Deaf/Hard of Hearing, with a suspected or confirmed diagnosis of Autism. You will complete an online survey that will take up to 30 minutes of your time. No identifiable information will be collected during the study.
Survey Link: https://gsu.qualtrics.com/jfe/form/SV_1yTCLlbSyRXY8Xc
Contact info: Akilah Heggs, PhD (Principal Investigator) at email@example.com Kristina Ormond, AuD (student investigator) at firstname.lastname@example.org.
Study on How Deaf and Hard of Hearing Individuals Use Instagram to Connect with the Hearing World
I am currently looking for research participants that are between the ages of 18-30, have a minimum of a 41 dB hearing loss, live in America, and are frequent Instagram users. The preliminary screening survey is located at https://liberty.co1.qualtrics.com/jfe/form/SV_4MdEQTRqKKoeMzs.
Your participation, if willing, will require you to complete a brief interview on Zoom that will take no more than 1 hour to complete. You will also be asked to download your Instagram data and share the file with the researcher where your Instagram messages and comments will be collected and analyzed. Names and other identifying information will be requested as part of this study, but the information will remain confidential.
Interviews will take place between July 11, 2022 – September 12, 2022, on Mondays – Fridays from 5pm – 9pm Eastern time and Saturdays from 10-4pm Eastern time. If you are interested in continuing to participate in this study, please let me know at your earliest convenience which time works the best for you to schedule an interview.
Impacts of Manual Parameters on American Sign Language Intelligibility
This study will research how manual parameters impact ASL intelligibility through blurry and laggy videos. To participate, you must be fluent in ASL and 18+ years old. You can complete the study online. After participating, you will receive a $15 gift card as compensation for your time. If you are interested or have any questions, please email email@example.com. Thank you!
Listening & Literacy Among Children With Cochlear Implants
This study is done completely online.
Anyone who meets participant criteria and is interested can participate.
This study examines auditory perception factors that might impact literacy development in children with cochlear implants. There have been auditory perception factors implicated in reading abilities in hearing kids, but not much done in looking at these factors in kids with hearing loss, particularly those with CIs. Families who participate will be compensated.
Participants should meet the following criteria:
- Children age 7-12
- Child’s hearing loss (severe-profound) was detected at or near birth
- Child received at least one cochlear implant prior to the age of 3
- Child relies on spoken English for communication
- Child exhibits no other disabilities
For an overview go here: https://prezi.com/view/w1N9DI5BPOSfKoH6jyzc/
Those interested in learning more or participating in this study should contact Dr. James Mahshie at (301)-785-4428 or firstname.lastname@example.org.
Registration can also be done at https://www.gwu-implant.org/
Parent Perceptions on the Effect of COVID-19 on Pediatric Speech and Hearing Services
Are you a parent/guardian/care giver of a child who receives services from a speech-language pathologist or hearing healthcare provider? If so, we invite you to participate in a research study conducted by Sarah Allen, AuD, PhD, CCC-A and Charia Hall, AuD, CCC-A both faculty of the UAMS College of Health Professions’ Audiology Department.
The purpose of this study is to understand the experiences parents have had pursuing speech/language and hearing care during the COVID-19 pandemic. The survey only takes 10-15 minutes to complete.
Thank you for your consideration,
Sarah Allen, AuD, PhD, CCC-A and Charia Hall, AuD, CCC-A
Caregiver Comparison of the Language Use Inventory to the Pragmatics Checklist for Families of Children Who are Deaf or Hard of Hearing
Researchers from Idaho State University are conducting a study comparing two methods of assessing the pragmatic, (or social language use) abilities of children who are Deaf or Hard of Hearing between 24-60 months of age. Specifically, this study compares caregivers’ reflections on two assessments (the Pragmatics Checklist & the Language Use Inventory), for pragmatic language skills. Participants from around the country are encouraged to apply for our study as it is completed solely online. In return for their participation and completion of the study, participants will be provided their child’s language use results and will be entered into a raffle for a $50 Amazon gift card.
Who can participate:
- Caregivers of Children who are Deaf or Hard of Hearing ages 24-60 months of age.
Caregivers will be asked to:
- Complete two online assessments
- Take two short online surveys
- This study will require approximately one hour of participant’s time
- Daphne Darling 208-867-6434 email@example.com
- Dr. Kristina Blaiser firstname.lastname@example.org
Neurocognition of Literacy in Children who are Deaf and Hard of Hearing
Researchers from Vanderbilt University at the Brain Development Lab are conducting a first of its kind study looking at how d/Deaf, hard of hearing, and hearing children’s brains develop reading skill. We are particularly interested in how varying communication modes (spoken English, ASL, or use of both) may change how the brain develops. Participants from around the country are encouraged to apply for our study in Nashville, Tennessee. Travel accommodations are provided to those eligible. Fluent signing members of the lab are available to meet with parents and participants who communicate in American Sign Language.
Who can participate:
- Children ages 10 – 16 who are d/Deaf, hard of hearing, and hearing
- No metal in the body - includes cochlear implants and bone anchored hearing aids
What to expect:
- A video interview
- Minimum of two sessions including fMRI (functional Magnetic Resonance Imaging)
- Standardized tests with scores provided to parents after participation
- Hearing test
- Travel and food accommodations to participants coming from around the country
- Pictures of your child’s brain
Find out if you’re eligible:
Take the 5-minute survey here! https://redcap.link/DHHReadingStudy
- Lab email: BrainDevelopmentLaboratory@gmail.com
- Lab PI Dr. James Booth: email@example.com