Posts Tagged ‘parent support’

Rana Ottallah: Finding My Way Home

March 26, 2018

I have attended two Hands & Voices Leadership conferences and my first Early Hearing Detection and Intervention (EHDI) conference. There is no place on earth that felt like home than those three conferences.

Being a parent of Deaf/Hard of hearing child, with strong beliefs and convictions–is a lonely place. Single motherhood is a lonely place, strong advocacy for Deaf and Hard of hearing children is a lonely place, being a female community leader is a lonely place. All of these roles come with lots of emotional pressures, and the pressure to look strong and capable all the time. Educated , informed, calm, collected , on top of your game, and prepared for any and all changes of plans–at each and every setting.

The weight of responsibilities on my shoulders gets heavier and heavier by the day–I feel emotionally and physically drained. I feel lonely,and on my own. Nobody gets it or understands it.

Moms of Hands and Voices

The first time I attended a Hands & Voices Leadership conference, I met other parents and listened to their stories, I felt complete, whole and at Home. I wasn’t alone anymore. I felt the warmth of home surrounded by mothers like me, experiencing the same emotions and feeling similar pressure

moms of hands and voices 2

Things came into prospective and the vision became much clearer when I listened to other mothers tell their stories, share milestones, and share emotional highs and lows.

I realized that it is okay to feel down, overwhelmed, frustrated, but it’s not okay to feel alone when I am a member of the Hands & Voices home. There are hundreds of Hands & Voices mothers and leaders out there who get it, understand it, and are available to pull me up when I am down, wipe my  tears when I cry, and cheer me up when I feel helpless and frustrated.

I no longer feel alone, I found my way home.

parents of hands and voices

A home filled with Hands & Voices warmth, support, and unconditional love and understanding of parents and family struggles.

I am emotionally charged and ready for whatever comes my way. I am headed to my smaller home a better mom, stronger advocate, and more capable community leader with so much to give and so much to share.

Thank you Hands & Voices for bringing me home.

 

Rana Ottallah

Facebooktwittergoogle_pluspinterestmailFacebooktwittergoogle_pluspinterestmail

Chevone Petersen: Live Your Best Life Even in Your Weakest Moments

February 24, 2015

Kai peterson HV quote

I found myself missing the child I once knew. The one I always referred to as “happy-go-lucky”, the one who loved my cuddles and giggled through my delightful butterfly kisses!

You see my son was diagnosed with delayed speech and language mid 2011 and then mild hearing loss at the end of 2011. The 6 months that followed his diagnoses were a roller coaster of fluctuating loss, pushing for intervention and finding support through online communities!

All this while my son spent the better part of 2012 not hearing his teacher. And me, yearning to connect with other parents.

All I found though were resources referring to profound hearing loss…believing that we did not fit the “category” of needing support since we were fluctuating between mild and moderate. Even our government hospital agreed that my son was not a “candidate” for intervention services.

It angered me that my son’s challenges and diagnoses could just be dismissed by the flick of the wrist. File closed. Move on. Come back in a year! Our system disappointed me, it failed us, and to this day, still continues to fail many families.

I made a decision to take ownership of my son’s challenges. My son’s worth was NOT going to be defined by his level of hearing loss!

kai playground

I enrolled him at a school for the deaf, where he received the necessary intervention in 2013. He thrived! His language became more colorful and bright! Leaving home at 5:30am and arriving back after 6pm; a four hour journey everyday, was well worth the sacrifice.

Today, my son has a dedicated “Team Kai”, he attends mainstream school and still continues to receive intervention services privately. He wears bilateral hearing aids and uses his FM system in the classroom. His teachers are supportive and accommodating. He is the only deaf/hard of hearing child in a school of +/- 900 students!

So you may wonder, why do I miss the child I once knew, the “happy go lucky” boy? Sensory Processing Disorder (SPD)!

His hearing loss is no longer our biggest challenge.  His SPD and behavioral responses is what’s got me “missing” the child I once knew…he has become my four seasons in a day…I never know what to expect when I get home.

Watching my child go from a loving happy go lucky boy to an angry, aggressive and intolerant child during a sensory meltdown is not easy; it is extremely unsettling. I am however encouraged when his teacher tells me how he advocates for himself at the age of 7. He asks to go for a walk where he can have some time to self regulate when the classroom environment becomes too noisy, or the tapping of a pencil on desk is making him feel “all funny inside” and sitting is becoming unbearable. He reminds his teacher to use the FM system when she forgets, and he works exceptionally hard!

Together we’ve been working on how to best “manage” his reactions to overwhelming sensory input. It’s our mom-son adventure!

His resilience has inspired me to reach out to other families. In 2014 I founded Decibels of Love, a parent-to-parent support group for families raising deaf/hard of hearing children. Together we grow. Together we empower. I believe that the smallest act of kindness CAN change someone’s world forever. All it takes is one family to advocate, educate and empower an entire community!

Early on in my own life journey I promised myself that I would always try to live my best life even in my weakest moments. It is this philosophy that’s allowed me to maintain my sanity, to draw myself closer to who I am and strive to be the best parent that I can be… 

One would think that growing up with a hard of hearing father would have prepared me for this journey, but this could not be further from the truth. Through my son I realized that I also had a level of ignorance. It is only through my son’s diagnoses that I  could truly understand my father’s world…a world of silence embraced by the knowledge that all things are possible if you believe and have the courage to be the change…

 

Chevone Petersen

South Africa

Facebooktwittergoogle_pluspinterestmailFacebooktwittergoogle_pluspinterestmail

This is the place where we find each other…

October 29, 2013

HV logo

We’re parents and families with children who are deaf or hard of hearing (DHH).  Most of us are hearing ourselves (95% of us, according to the statistics) and our DHH child might be the first person with hearing loss we’ve ever met (not counting Great Aunt Louise).

Wherever you are in your parent journey with your child…whether you’re talking, signing, cueing or combining, or even if you have no idea yet what the best communication mode will be, you’re welcome here. Whether you’re child is newly identified with a hearing loss or a senior in high school, you’re welcome here.

This is Hands & Voices…we’re parents who are trying to make the best decisions we can for our children from birth until they leave the nest. It helps to share with each other so we started this blog.

If you want to know more about our organization, please visit the official website at www.handsandvoices.org

Welcome to this parent community. Please be nice. We’re all trying the best we can and would never hurt anybody’s feelings intentionally, so thank you for being sensitive with your remarks to the diverse perspectives shared on this blog. We reserve the right to moderate comments and will not publish anything that gives offense. If we have missed the mark for you, please let us know and we’ll try harder the next time.

Facebooktwittergoogle_pluspinterestmailFacebooktwittergoogle_pluspinterestmail