Posts Tagged ‘cued speech’

Lisa Weiss: Speaking, Cueing, and Now, Signing

September 24, 2018

The Cue Sign Movement: Sign Language + Cued Speech = Love

by Lisa Ann Weiss, Esq.

Before you click through to the next thing or toss this aside, please just read the whole thing through.  I am writing this because it is important to me to share my perspective with you.  I promise it will only take a few minutes of your time and it may be important for you or someone you love.

For more than a decade I have shared my deaf story.  Yes.  I have a deaf story, even though I am hearing.  I have a deaf child and this automatically gives me story rights.  I will not entertain any arguments about that.

Most of the time what interests people about my deaf story is that I chose to learn a visual mode of communication that is not sign language.  In 2004 when I realized that my 2 ½ year old child was deaf I read a book called “Choices In Deafness” by Sue Schwartz.   As I have explained almost every time I’ve shared my story, that book was when I first learned that there were choices. Until then I assumed that all deaf people signed.  From the beginning I have always believed in whatever choice works, at any time and in any situation.  What I have learned is that the situations are constantly changing and it is beneficial to have lots of options.

My child is a native cuer because I learned Cued Speech first.   I also chose to give my child cochlear implants and an education in listening and spoken language, so my child uses spoken English.  I have always known that my child would sign at some point and that I would also learn sign.

From my perspective, deaf stories oftentimes involve a lack of connection.  Certainly, that has been my experience.  My family has attended Cued Speech camps since 2005. I am grateful for them.  My whole family appreciates them.  It is one of the few times we feel connected to a larger community and are able to really improve our family’s communication skills.  I have always longed for a larger community.

My high schooler and I attended the first Cue Sign Summit that was held at Gallaudet University in June 2018.  It was intended to broaden the community of people who communicate who use ASL and Cued Speech.  There was instruction in all levels of Cued Speech and ASL, as well as four days of opportunities to interact and learn the latest research and about people’s experiences.  When we arrived, my 16 year old knew slightly more sign than I did, which was essentially none.  There were roughly 60 people at the four day event, all with varying levels of fluency in Cued Speech and ASL.  What I experienced at Cue Sign Summit is a broadening my deaf experience I have been yearning for.  I don’t believe I am the only person who feels this way and I don’t believe it is specific to me being a cuer.

ASL and Cued Speech sitting in a Tree, K-I-S-S-I-N-G.  First comes love.  Then comes connection, understanding, and respect for one another.  Then comes a whole new community of people who are happier, healthier, and united.  Okay.  So I’ve changed the words.  Plus it doesn’t rhyme at all.  But this what I see.  My child has now enrolled at a deaf school where they only teach in ASL.  The people at this school are welcoming my native cuer with their minds and arms wide open.

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Elizabeth Albers: Language in Any Form is a Beautiful Thing

June 12, 2017

We are the Albers Family, a homeschooling family of nine with two children who have severe to profound hearing loss. We entered the deaf/hoh world three years ago when we adopted our son, Matthew. He was five years old with severe hearing loss. We were told that he could hear and talk with the help of his hearing aids. We thought, Okay, we can handle that! We knew that his hearing loss might be worse than what was presented in his file, but we clung to the hope that he could hear and talk with his hearing aids. We began learning some sign language, and researching deafness. We had moments of second guessing ourselves, but ultimately we knew he was our son and that we would do whatever was needed to help him.

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The day we got him was a whirlwind. He came to us showing us pictures we had sent to him. He had no hearing aids. They told us they were broken. That first day he soaked up what little sign language we knew. We remember his first signs, same and different. We knew we had a smart little boy on our hands.  The next day they brought us his hearing aids with no batteries. We managed to find some, and we were so hopeful when he put them in his little ears. He knew exactly what to do.  We tried all the noises we could, there was no response. Our hearts sunk a little. That night, while in China, we got on lifeprint.com and started taking the free on-line courses for ASL. We knew we needed to up our game. This little boy was taking in all the ASL that we could give him. He wanted to know the signs for everything. He was soaking up language for the first time, and he was so excited about it. We wished we would have learned more.

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After bringing him home we started private ASL lessons with a deaf tutor, continued to learn through lifeprint.com, scoured our county for deaf people (there weren’t many), met as many deaf people as we could, did hours of research on the computer and went to multiple audiologist and ENT visits. After several months with new hearing aids that were helping him just a tiny bit, we decided to explore Cochlear Implants. We were torn, because there was such a divide on what the right thing to do is within the deaf/hoh community. Ultimately, after lots of prayer, watching Rachel Coleman’s “One Deaf Child” , and doing more research, we knew we wanted our son to try it. Ten months after being home he was activated. At first he didn’t like the sound, but he grew to enjoy new sounds over the coming weeks and months. I remember about a month after being activated, he heard the sound of a bird chirping outside, and he wanted to know what it was. We worked closely with our audio-verbal therapist who was able to help us know how to teach him to listen. His speech began improving significantly. We knew we had made the right decision.  We’ve continued with English, using sign language when needed. He’s learning to read and write at home and is quickly catching up with his peers.

Fast-forward 3 years. We are now home with another profoundly deaf son, Isaac, who is 4 years old. He was adopted 7 months ago with no language. Unlike Matthew, he had profound hearing loss. There was no hope of hearing aids helping him. But we were more prepared this time. We had so many things in our tool belt. We had a better knowledge of ASL and the deaf/hoh world, we knew the resources that were available to us, we knew what the journey to Cochlear Implants would be, and we had even learned Cued Speech by going to Cue Camp Cheerio. We decided to pursue cochlear implants and got the ball rolling with that right away with our ENT and audiologist. Right now he has been activated about 7 weeks. He’s starting to respond to our voices, but still very far from understanding speech. Since we knew that we wanted to give him access to language right away, we started with sign language from the moment we met him. He quickly grew to expressively use over 150 signs. His first sign was car. He loved looking out the cars through our hotel room in China. Once he had a good grasp of basic signs, where we felt like could effectively communicate his needs to us, we moved to using cued speech. We’ve focusing on using and teaching him cued speech for six weeks. Our whole family knows the system and continues to work on fluency. Receptively he understands a many of the basic phrases we use, and expressively he knows about a dozen words. Every day he adds a few more words to his vocabulary. It’s quite amazing to see his progression.

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This journey has not been simple. There have been ups and downs. Moments of self-doubt. But we keep going. We keep learning and doing what we feel is best for our deaf children and our family as a whole. We’ve learned that the process is always changing and growing too. Their needs may be different year to year. We’ve had to, sometimes, ignore the voices around us, telling us what we HAVE to do for our children. There are an abundance of opinions out there when it comes to raising and educating deaf children! We have, more than ever, learned over these last 3 years that every child is different. There is certainly not a one size fits all or one language fits all or one education fits all when it comes to deafness. The biggest joy of this journey is seeing our boys, who had no language those first few years of their lives, pick up a new word through sign, speech or cue. Seeing their eyes light up with understanding is an amazing thing.

Language, in any form, is a beautiful thing.

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Karla Giese: My Life in Full Circle

March 22, 2017

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For me, being deaf is a way of life.  I was born hearing, and began losing my hearing as an infant.  My parents couldn’t get a proper diagnosis until I was almost two and then I was fitted with hearing aids.  My parents chose to raise me with an emphasis on spoken language, using speech therapy, hearing aids, and FM systems while being educated in the mainstream setting. My hearing became progressively worse and I became profoundly deaf by the time I was nine years old.

At that point, relying only on auditory information started becoming more and more difficult. By fifth grade, I began learning sign language and using an interpreter, which continued through high school and college.  I went to college and earned my BA in Deaf Education, Elementary Education, and Special Education.  I moved to the Chicago suburbs and began my teaching career working with deaf students who also had emotional & behavioral disorders and I learned a LOT about behavior management. At the same time, I began working in Early Intervention and became credentialed as a Developmental Therapist-Hearing (DTH).  Over the years, I went back to school to get my Masters in Early Childhood Special Education and have taught in a variety of schools including residential, self-contained, resource room, and itinerant services.  I had the opportunity to start moving into more administrative roles in the schools as a Curriculum Coordinator, Assistant to the Principal, and am now Director of Student Support Services in a Montessori School that has an embedded Cued Speech program.  In addition, I am also the Coordinator of CHOICES for Parents, a statewide parent support program for families of deaf and hard of hearing children.  Plus, I’m pursuing my doctorate degree in Special Education with a concentration in Deaf Education.  I am very interested in parent support, early intervention, language acquisition and literacy.

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I married a hearing man and together we have four beautiful children, all hearing.  However, two of them have been involved in the early intervention system and have had IEPs in the mainstream setting.  I feel like I’ve come full circle in my life in that I’ve experienced all educational settings and communication modalities, both professionally and personally.  I also feel like I’ve been on all sides of the table at the IEP, as a student, parent, teacher, advocate, and administrator.  

My personal and professional experiences lead me to the point that I most often emphasize when I work with families of deaf and hard of hearing children: when your needs change, your choices can change too!  Too often, people get stuck on one way to do things.  If something isn’t working, why not explore something new?  If something is working, why not add something new?  Because I can talk, sign, and cue, I have met so many different people and have had my life enriched in so many ways.  I am able to be a part of the hearing world, Deaf community and Cued Speech community.  There is no one size fits all.  There never has been!  What works for your family is what works for you and your child.  Keep an open mind and be willing to explore Sign Language, ASL, spoken language, and Cued Speech options!

 

 

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