Archive for the ‘Hands & Voices’ Category

Hands & Voices Giving Tuesday 2017

November 2, 2017

hands and voices babies

We have a day for giving thanks. We have two days for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back.

On Tuesday, November 28, 2017, charities, families, businesses, community centers, and students around the world will come together for one common purpose: to celebrate generosity and to give.
Portal Page (1)
It’s a simple idea. It’s a way for your family, your community, your company, or your organization to come together to give something more. Then tell everyone you can about how you are giving. Join us and be a part of a global celebration of a new tradition of generosity.
HV Facebook page (1)
Why are we doing Giving Tuesday?
It is a way for Hands & Voices HQ to raise funds and awareness on a national level. It will be the only giving campaign that we ask you (personally), your board and your chapter to participate in. It will provide us with the funds to continue to support families with Deaf and Hard of Hearing children.
We also have a brand new book for families: Stories for Families Raising Deaf and Hard of Hearing Children (ebook)

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Hands & Voices Leadership Conference 2017: Cultural Perspectives

October 10, 2017

HV Panel

Panel Session: Engaging Families and Leaders in a Diverse World

This year the Hands & Voices Leadership Conference brought cultural diversity to the table. A group of seven women, moms and clinicians whose cultural heritage represents many corners of the world, participated in a discussion panel.

Cultural diversity is a topic we need to discuss so we can better serve families from different cultural backgrounds. Culture is the integrated pattern of learned beliefs and behaviors (Nunez, 2006; Betancourt, 2003). It explains how we view and value the world. It is influenced by socioeconomic status, religion, sexual orientation, occupation, etc. (2006, 2003). Culture is the way we think, act, and interact with others. People from the same race do not necessarily share the same culture. As service providers, we should practice, grow and master our cultural competence skills. Cultural competence allows us to determine the social and cultural influences in a person’s health beliefs and behaviors. It is the ability to interact with people who are different than ourselves (Nunez, 2006, Dy, 2011).

In the following paragraphs, parent-guides/panel participants discuss key aspects to keep in mind when serving our Hands & Voices families:

Different cultures have different reactions to a diagnosis of hearing loss. Those reactions influence how and when we seek support. As parent-guides we can help families access support services sooner rather than later if we can connect with them and understand where they are in their own journey.

Our Connection: As parent-guides serving families from different cultures, we need to keep in mind that there is a common connection between us and the DHH families that we serve, and that the connection is the common diagnosis. This is an unbreakable bond that will open the door for us to serve and support those families. Language and translations: Language barriers also create challenges. Terms in English may not reflect the same meaning in different languages. Families need to understand exact terminology, be able to share the correct information, and exchange viewpoints about their child’s care to ensure a clear understanding of the decisions they make on behalf of their children. Are we connecting families with similar backgrounds so that they can feel a sense of familiarity especially at a time when everything is new and unknown?

Family preferences: We need to understand where each family is in their own journey. Find out about the families’ view of hearing loss, and support them accordingly. For instance, after the diagnosis some families are comfortable jumping in and starting an action plan. However, other families may need time to absorb, digest, and understand what their child’s diagnosis means to them and how they choose to approach the decisions they need to make regarding their child’s language acquisition, education, and even medical or professional treatment. It is important to provide a wide variety of opportunities for engagement. Small intimate gatherings are just as effective as big social events. Educational opportunities both virtual and real-time can bring important information. Resources should be accessible at a time that is convenient for families. We need to keep our hand on the pulse of the family when it comes to introducing new supports, like a deaf mentor, support group, family activities, etc.

Extended Families: Extended large families also play a role in many cultures and may impact how we support certain families. As members of Hands & Voices, we already know that it takes a village to raise a Deaf or Hard of Hearing Child. It is important to think about grandparents’ or other family members’ views on deafness or Hard of Hearing, and how we can include and involve them in our efforts to serve and educate their families.

Asking for help: Things may get difficult, and the tools that we have may not be sufficient for supporting some diverse families. At Hands & Voices, we have members from different cultural backgrounds. Reaching out to them may help parent-guides discover new resources or learn different options on how to better support a specific family. We should all keep in mind that asking for help and resources does not make us lesser advocates or guides, because all parent-guides face many challenges serving families from a different culture than theirs

We should pay close attention to each family’s dynamics and preferences, be aware of cultural influences, and offer our support accordingly. We are not alone. We all are constantly navigating others’ beliefs and behaviors. Finally, we should ask for help when in doubt, or if we think we are running short of resources. We are here to help each other help more families succeed.

 

Thank you to Rana Ottallah & Rosabel Agbayani parent-guides for their input in writing this summary. Thank you to all the panel participants for the content of this summary: Apryl Chauhan (CA), Yiesell Rayon (HQ,CA), Janet DesGeorges(HQ), Djenne-amal Morris (HQ), Rana Ottallah (LA), Rosabel Agbayani (CA), and Alejandra Ullauri (IL).

References:

Betancourt, J.R. (2003). Cross-Cultural Medical Education: Conceptual Approaches and Frameworks for Evaluation. Academic Medicine, 78(6), 560-569.

Dy, C.J., Nelson, C.L. (2011). Diversity, Cultural Competence, and Patient Trust. Clinical Orthop Related Research 469, 1878-1882.

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A New Book for Families with Deaf and Hard of Hearing Children

April 11, 2017

HV book

Maria Renninger recalls seeing the word “refer” flash on the screen after her baby girl’s hearing screening hours after birth, and wondered what it meant. “Refer to what? The operating manual?” She found herself wishing for an operating manual many times during her early years as a new mom and on her unexpected journey raising a child who is deaf or hard of hearing.

This is just one of the 26 personal reflections shared in a new book by Hands & Voices, We Are Hands & Voices: Stories for Families Raising Children Who Are Deaf/Hard of Hearing, from moms and dads raising children who are deaf or hard of hearing, with a few insights from young people finding their way, and six gems from women who are Deaf or hard of hearing themselves.

“It wasn’t cheating, it was playing fair,” notes Stephanie Olson, when her sister and brother signaled her how to get to home base during nighttime games in her neighborhood, in the darkness only imaginable far from city lights. Over time, hearing parents learn much from their children and from adults who have hearing differences that begin to shed light on what daily life is like, and CAN be like, when we begin to experience the world as our children do. Playing fair means understanding access and appreciating differences.

Knowing that there is no better way to connect than the art of story, four experienced moms (Karen Putz,  Stephanie Olson, Janet Des Georges and Sara Kennedy) put this book together to shed light on the journey and to celebrate our children, who teach us again and again that “the little things are not little at all,” just as author and mom Bianca Birdsey says about raising her daughters who are deaf in South Africa in her story.

bianca and girls

Here is what others are saying about the book:

“I was overwhelmed when our daughter was diagnosed as deaf, and I searched for the stories of other parents who had helped their children navigate through a hearing world and lead productive, fulfilling lives.  It was these connections, like the ones detailed in “We Are Hands & Voices,” that allowed me to understand that I was part of a larger, welcoming community.  The powerful insights and wisdom you will find in this book will inspire you.  I wish it had been around 16 years ago!”

– Lee Woodruff, parent and best-selling author

 

“Positive parental supports is an integral part of a child’s life.  Having the support of other families who have walked a similar path, well, that’s priceless.”

 – Andrea Marwah, parent and Illinois Hands & Voices, President

 

“One of the best outcomes of a book of stories is that it illustrates the varying experiences, individual characteristics, and often unpredictable paths taken by individuals and families. Stories break down walls. In this book you will find that it is not hearing status that defines who these people are; rather it is their life experiences that shape who they become.”

– Cheryl Johnson, parent and advocate, Co-Founder of Hands & Voices

 

“These deaf kids may have a hearing loss, but their hearing loss doesn’t necessary mean that it has, controls, operates or owns them. This book has great and incredible insight on how our hearing loss doesn’t necessarily define us, but that we define who we really are.”

– Justin Osmond, member of the world-renowned Osmond Family, motivational speaker and author

The digital copy is available on Amazon: HV Stories for Families

To order hard copies or bulk orders:

We are Hands & Voices 2017 order form (1)

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The Hands & Voices Network:  It takes a Van to get to Destiny

September 22, 2015

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Having just flown back from our Annual H&V Leadership Conference, the buzz is in the air….on Facebook, email exchanges, twitter, Instagram, and texts….

“It was SO good to connect.”

“Thank you for helping me with what I needed for a strong healthy chapter”

“Thank you for supporting me in a situation I have with my own child”

It’s just so wonderful to see the connecting, the exchanging of support, the “Wisdom Among Us”.  We get such little face time together, that when we are together we talk a lot about feeling like we are back together as a family.  We share our unique and yet common experiences of raising a child who is Deaf/Hard of Hearing, and we CONNECT!  I personally walk away from the conference every year filled up and ready to make sure parent-to-parent support is available to all, and to tackle the challenges of improving the lives of our children in the health, education, and other systems that serve us.

The ‘magic’ or our family in some ways has elements we can define and prepare for, but also just happens when we are together.  The logistics of bringing a conference together, however, is not magic – it’s hard work, TO DO lists, endless planning of details, and dealing with onsite happenings you just can’t predict.  We learn from these experiences and also grow from them.  I want to  give a shout out to Molly Martzke, and  Jeannene Evenstad, along with our full H&V staff that made the logistics parts of this conference come together.

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But it’s not just AT the conference where we get this vibe.  In fact, I just wanted to share a few moments that happened AFTER the conference, and I mean IMMEDIATELY after the conference when everyone was tired, looking towards home, and back to the ‘inboxes’ we so willingly abandoned for a few short days.

At our conference this year, we had the privilege of welcoming some international guests to our ‘family’ for the conference from Russia, China, and Kenya.  As we closed out our time, people from among us stepped up to ensure that our guests got where they needed to go, created even more opportunity to enjoy their visit here in the U.S. and to ensure that the network of not just a few, but of many, continued the networking.

Stephanie, Jackie, Lisa

So… thank you Stephanie Olson and Lisa Crawford for opening your home after the conference, spending more time with our Kenya partner, Jackie.  Jacki Oduor is giving to us the gift of herself, energy, and commitment to families in Kenya.  We are so grateful to be connected with her.

Photo:  Stephanie, Jackie, Lisa

To Candace, who not only helped arrange a visit from two special guest professionals from China, but went on to Colorado and spent the next day showing elements of the U.S.  educational system in Colorado, and other activities to help broaden the guests perspectives.  To our professional partner, Christine Yoshinaga Itano who helped arrange this as well.

chinese visitors

The China group visiting a Colorado preschool after flying from the conference in Texas to Colorado.

                                                                     

And to Molly, who is the Leader for our Russian/U.S. Partnership Project, driving our guests in a rather large, 15 passenger van that tested the limits at times of wearing the hat of ‘driver’  amongst her other duties.

huge van

You try parking this huge van perfectly every time.

 

 

 

I wanted to mention these rather ‘logistical’ elements of the ‘network’ that helps us, in the midst of limitations of our capacity, the amazing number of people who step up and abandon their title for just getting done what needs to get done.

Networking together.

Networking together.

I am so proud to be a part of this organization.  Not just for the stars on our map on our website that shows our growth, but that in any given moment, the number of people that are willing to step up and ‘just get it done’ is astounding to me. Thank you all, for making this 12th Annual Conference the best ever, and for keeping the network going even when we are not face to face.

Finally, as the Chinese visitors were boarding a plane after the conference to the next step of their journey, they turned to Candace and said, about their being here to experience Hands & Voices, “This is Destiny”.

Yes, it is.

 

Janet DesGeorges, Executive Director, Hands & Voices Headquarters

View photos from the conference here: www.instagram.com/handsandvoices

Follow us on Facebook: www.facebook.com/handsandvoices

Follow us on Twitter: www.twitter.com/handsandvoices

 

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Guided by China, A Journey Abroad and Within

June 11, 2015

candace and kids

As Board President of Hands & Voices Headquarters, I was honored to represent H & V through a Hear the World Foundation Grant, by joining U.S. educators and audiologists who have the common goal of sharing strategies on how to foster language development in children who are deaf and hard of hearing. Dr. Christine Yoshinaga-Itano, Audiologist, Teacher, and Researcher, periodically leads a group in conjunction with Soaring Hope Mission. This year, our team of US, Chinese and Taiwanese professionals traveled to Nanjing for a conference with China’s Newborn Screening Committee and then on to Yinchuan to directly work with 150 children, parents and staff in a regional Rehab Center.  Phonak graciously donated hearing aids and local representatives to join us as well.

As the Director of MN Hands & Voices at Lifetrack for over 14 years, I have had the pleasure of working with the most inspiring parents. I’ve been bolstered by the wisdom and life experiences of adult role models. I have also been humbled by the passion and dedication of professionals in the field.

As a parent of a young adult who is deaf, my role on this trip was intended to be that of mentor and counsel, based on my personal and work experience. At Hands & Voices, we use the term “Guide By Your Side” to refer to our trained Parent Guides who help families navigate next steps. In China, however, I learned far more than I can ever could impart. In the end, it was who was “Guided By China.”

A blog of the trip can be found here: Guided By China

Candace Lindow-Davies

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The ‘Why’ of What We Do at Hands & Voices

March 3, 2015

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During a break at a recent Hands & Voices staff and board meeting, I took a good look around the room. Some of the staff and board members were engaged in one-on-one conversations. Others were in groups. 

Over the years, every single person on the board and staff came to Hands & Voices because of one thing: a passion for families with deaf and hard of hearing children.

Passion.

Isn’t that so frou-frou? Passion? I mean, come on.

Dedication. Involvement. Contribution. Those are certainly words to describe people who serve at every level of Hands & Voices.

What’s the core of what we do at Hands & Voices? What are we about? Who are we about? What’s our mission? What are our values? What is the “why” of what we do?

To those who may not be deeply familiar for what we stand for and how we support families, there’s often the misconception that we’re all about choices for families. That it’s all about communication methods and modalities.

But it’s not that.

It’s all too easy to get hung up on trying to balance the dance of equality among the choices out there. When you do that, you never win. It’s never balanced. It can’t be. This whole journey with deaf and hard of hearing children can’t be summed up by communication alone. To do that is to compartmentalize the journey.

At Hands & Voices we are sometimes bombarded with finger-pointing by others who insist we must remain neutral, balanced, and equal on every level in our daily work.

Instead, our work goes deeper than that. It’s about the emotional ups and downs of being a parent and understanding this journey. It’s about reaching out so that no one has to journey alone. It’s about providing support during the rough times and celebrating the joys.

Call it frou-frou if you will. We call it passion. It’s the fuel that drives us to do this day in and day out–without always having the funding to do so.

Passion is what keeps us up at nights responding to a parent who is frantic about the next day’s IEP meeting.

Passion is what allows us to have the energy to drive three hours to host an event for parents and children.

Passion is what pushes us to share resources, knowledge, and encouragement so other parents can be empowered on their own journeys.

 

Karen Putz

Mom to David, Lauren, & Steven

Co-Coordinator of Deaf and Hard of Hearing Infusion at Hands & Voices

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Helping Families with Deaf and Hard of Hearing Children

November 26, 2014

giving tuesday

We have a day for giving thanks. We have two days for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back.

On Tuesday, December 2, 2014, charities, families, businesses, community centers, and students around the world will come together for one common purpose: to celebrate generosity and to give.
It’s a simple idea. It’s a way for your family, your community, your company, or your organization to come together to give something more. Then tell everyone you can about how you are giving. Join us and be a part of a global celebration of a new tradition of generosity.
Why are we doing Giving Tuesday?
It is a way for H&V HQ to raise funds and awareness on a national level. It will be the only giving campaign that we ask you (personally), your board and your chapter to participate in. It will provide us with the funds to continue to support you!

How do I #UNselfie? 

1. Take a “selfie” with a caption (or have it on a card in the picture) explaining how or why you and/or your friends are “giving” this year.
2. Always use the hashtags #UNselfie and #GivingTuesday and #HVGiving

 3. Post it to Instagram, Facebook and/or Twitter and share with friends!

   TELL everyone you can about how you are giving. Join us and be a part of a global celebration of a new tradition of generosity.

   SHARE your favorite #UNselfies on your H&V sites and personal sites.

ASK people to share their support on Facebook, Twitter, and Instagram through status updates, posts, or other creative content. A few ideas include giving people a way to tell others about their   donations on Facebook, or asking fans to change their profile pictures on Facebook and Instagram to your campaign image.

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Janet DesGeorges: Leadership Thoughts

April 4, 2014

Leadership Thoughts

Janet DesGeorges, H&V Executive Director

janet desgeorges2

Below is a compilation of thoughts about what it takes to be a leader at Hands & Voices! Hope you enjoy these simple comments! These are taken from the bi-monthly H&V E-NEWS series. If you would like to get on the list to receive information, resources, and updates from Hands & Voices, contact: janet@handsandvoices.org

What are your priorities?

“It is easy to develop a list of fifteen to twenty priorities, but I would argue that this is the same as having no priorities. Human beings typically can perform at a high level only if they focus their efforts, and the greater the number of priorities you have, the harder it becomes to focus.”
(Robert Steven Kaplan, What to Ask the Person in the Mirror: Critical Questions for Becoming a More Effective Leader and Reaching Your Potential)

So, what are your priorities? I have discovered over the years that many people would like me to focus on their priorities, and if I don’t have a good mechanism for the n-word (“NO”), then I may never get to what is really important to me and to achieving our goals at H&V. Remember, sometimes saying ‘NO’ to someone else’s request for your time/energy is a ‘YES’ to getting to what you know are the really important things. So, today, you might want to practice a ‘no’ or two. Someone once told me that my plate is full, and every time I say ‘YES’ to something, something else on that plate is slipping off. That visual has helped me to understand that there are only so many hours in the day, and we just have to be smart about our desire to say ‘YES’ as well as our ‘NO’. I am so grateful for all of you out there that have said ‘YES’ to the priority of supporting families via the Hands & Voices network. Now THERE’S a good ‘YES’!

Slow Down

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“Slow down and enjoy life. It’s not only the scenery you miss by going too fast – you also miss the sense of where you are going and why.” -Eddie Cantor

It is always good to reflect on how far we’ve come at Hands & Voices, and where we are going! With over 50 chapters in full swing here in the U.S. and abroad, it is more important than ever to know where we are going and why! To all of you who put your heart and soul into this organization, I want to thank you from the bottom of my heart.

Don’t forget to have a little ‘down time’ when needed. Remember that our organization is here for the long haul. We want to be a part of something that will exist beyond us, and into the next generation of children who are deaf/hh. So, relax…. AND get ready for a busy, action packed year of supporting families who have children who are d/hh. I know I am!

Feeling Overwhelmed

“When you come upon a wall, throw your hat over it, and then go get your hat.” – Anonymous

Feeling a bit overwhelmed? Wondering if you really have time for all this? (And by ‘this’ I mean improving the systems that serve our children who are deaf/hh.) There are times for all of us when the obstacles seem too challenging. Someone says, ‘we tried that and it can’t be done’ and that seems to diffuse or deflate us. We are not sure whether our efforts will really make a difference. REMEMBER where we have come from, what we have accomplished already, and what we want to achieve.

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We seek to support:


-A solid foundational start to the journey for our kids through informed decision making.
-Strong, healthy, communicating, language-laden children.
-Educational Excellence for all deaf/hh students.
-Prepared students ready to enter the work force.

Sounds daunting? If it were easy, others before us would have achieved these goals already. Keep your eye on the prize and keep moving forward. Together we can make a difference!

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Pass it On

PASS IT ON…. One of our HQ Board members, Harold Johnson recently sent me a link to a TED talk about ‘Crowd Accelerated Innovation’ – talking about the concept of information dissemination and innovation in this age of technology (specifically YouTube). Not only the ability to pass on information, but about how innovation can actually be replicated and improved upon as it is passed on from one source to another. It’s been one of the defining characteristics of H&V. One chapter has a good idea, and another chapter replicates and builds upon on it -and successful support to families grows in both quantity and quality. So, when you have a good idea, a successful event, or good resources you’ve come across -pass it on… If you are interested in this concept and want to see the TED talk, click here.

Process is Important

https://origin.ih.constantcontact.com/fs176/1108454597152/img/546.jpg“It’s not just what we do, but how we do it!” One of our favorite sayings around H&V HQ is to ask ourselves as staff/board members, “If I was not able to continue in my position, could the organization go on without me?” That is sometimes hard to do when our self-identity and desire to be needed is embroiled in our lives as leaders. This question ties to our current strategic plan focusing on sustainability and capacity. Organizations at some point cannot exist or depend on one particular individual. But it’s important to expand this concept beyond just the ‘what’ needs to get done to the ‘how’. What are the processes in place that keep the organization healthy? Decision making, prioritization of projects, project management plans…. It’s not just our ‘to do’ items that need consideration. It’s ensuring the procedures are in place and in writing so that if we left tomorrow, others could step in and not only know what to do, but how to do it. We want H&V to be strong, healthy and moving forward long after we are gone. That’s an empowering thought!

Find out more about Janet: Janet DesGeorges at Hands & Voices

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Hands & Voices Chapter Updates

March 13, 2014

Every day, our Hands & Voices chapters are connecting with families and doing some awesome work.  Here’s a quick summary  and highlights from several chapters:

 

Michigan: 

Michigan now has 14 Parent Guides in the GBYS Program and has increased the number of families served by 300% in one year.  At the end of a second visit recently, the Parent Guide said to the Spanish-speaking family that she hoped she had been able to help them. The mother replied through the interpreter, “Oh, you have helped us so much. You have given us a recipe to bake a cake!”

 

Oregon:

The GBYS Guides recently received training on “Cover Oregon,” the state-funded insurance programs and Medicaid.  Leadership training will be provided in June.  The GBYS program is partnering with EHDI to reach out to the homebirth and midwifery community as well as improving data collection.

 

Minnesota:

Five new guides have joined the GBYS Program. MN H &V hosted an Annual Roller Skating event during a very icy cold night in January.  113 people attended and had a chance to network and meet several adult role models who are deaf and hard of hearing, along with a fabulous representative from the Roller Girls and the team mascot!  Upcoming events include another collaboration with the Minneapolis Children’s Theatre, summer playgroups, and developing webinars and culturally-specific parent groups. MN H & V will be hosting the first ASTra Educational Advocacy Training based on the new Educational Advocacy book.

 

BC, Canada: 

BC H & V recently completed a GBYS Parent Guide training.  They are conducting interviews for another Parent Guide position.

BC H & V  had an amazing Unilateral Coffee Night last month. Great support happening between families plus an adult with unilateral hearing herself offered wonderful attitude and perspective on growing up with unilateral hearing.  BC H & V will be doing more of these specialized coffee nights in future.

 

Illinois: 

Illinois now has 16 guides and recently completed a training. IL H & V  hosted a “network event” during a teacher conference which allowed the guides to introduce themselves to the participating professionals/organizations and then we allowed each organization five minutes to share about their organization and leave each guide with their materials. We had over 20 organizations participate giving us a “one stop” experience to learn more about each other.  IL H & V held two Mom’s Night Inns, one in the Chicago area and another in the central part of the state and they are gearing up for a spring family event.  IL President, Andrea Marwah held an IDEA training at the ITHI Conference.

 

Delaware: 

DE H & V brought Harold Johnson out to speak at Delaware’s Still Listening, the state Department of Health hearing loss conference to introduce the O.U.R. Project.   DE H & V is working on setting up a series of Kidpower workshops.

In the works is a social event for families at the Delaware Natural History Museum with free admission, snacks, and interpreted tours.  After all, everybody loves dinosaurs.

New Mexico: 

 NM H & V will be establishing a GBYS program soon. The Christmas gift-wrapping fundraiser was a success.

 

Virginia:

The VA GBYS is now up to 150 families (23 are Spanish speaking) since August 2012. GBYS training is coming up in April.  Two “Meet and Greet” gatherings for families are coming up.

 

Texas: 

TX H & V just finished an annual GBYS training which included a break-out session for D/HH Guides.  Texas has nine Parent Guides (Four Spanish speaking) and four D/HH Guides. The number of families served is growing. TX H & V hosts an average of eight family events per month and recently produced videos in English and Spanish for a companion parent site.

 

Kentucky: 

KY H & V has been involved in several activities, including Lexington Hands Alive, a teen panel, Explore Your Future, New Beginnings Riding Program, Family Learning Vacation, and a parent night. A Big Brother/Big Sister initiative is in the works as well as a proposed Senate bill requiring hearing tests for all children prior to entering school.  KY H & V welcomed three new board members to the team.

 

Wisconsin:

WI H & V GBYS is using Tele-Connect options to pair Guides with families.  Face-to-face contact is still the best option, but the Tele-Connect option works well if families have a sick child or in the case of  inclement weather.  Two Spanish-speaking Guides have joined the team.

Colorado:

CO H & V has a new GBYS Coordinator, Liesel Thomas, a parent of two deaf children.  Her story is here:  The Thomas Family: A Story of Passionate Perseverance in Parenting.   CO H & V is partnering with two deaf organizations to create a Role Model program and is also working with a graduate student to survey EHDI experiences and parent to parent support for families with deaf and hard of hearing children.

 

Washington:

WA H & V GBYS is in the fourth year and has one coordinator and six Parent Guides. The goal is to increase the referrals and work with more families as well as hosting events. 

 

Nevada: 

NV H & V GBYS recently hired a new Parent Guide for the Vegas area and looking to add a Spanish-speaking Parent Guide.  Working closely with the state EHDI program and looking to expand services to families.

 Tennessee: 

TN H & V will be offering monthly open conference calls to share resources and connections.  The final revisions of the TN Resource Guide for Families of Deaf & Hard of Hearing Children are being worked on.  The Advocacy Committee is working on a Deaf Child Bill of Rights.

 

Pennsylvania: 

PA H & V GBYS is now getting direct referrals from the Department of Health.  A total of ten Parent Guides have been trained and offer a diverse background of experiences.  Parents can be matched up with more than one Guide if they have specific interests.

 

Nebraska: 

GBYS training, website, and brochure are under way with a focus on collaboration and outreach with agencies and organizations.  The Guides will be attending upcoming parent workshops and EHDI. NE H & V continues to collaborate with the “Connect” program and the monthly reading program which connects families with D/HH adults.

Utah:

UT H & V hosted two activities in February, a Night at the Capitol (pizza, met with legislators, and toured the Capitol) and a family game night that was popular with families with young children.  Utah is focusing on outreach and activities to families in the rural areas of the state.

Mississippi: 

MS H & V is moving along toward chapter authorization and accepting applications for board members.  They held a Valentine’s banquet and attended many state conferences and workshops.

 Iowa:

IA H & V has welcomed several new board members and continues to build up the GBYS program and plan for the upcoming Hearing Loss Symposium.

Maine: 

ME H & V held a family winter event which involved sledding, building snowmen, and popcorn and hot chocolate.  The group is working hard to incorporate GBYS into the state and expanding their board with new parents.

Wyoming:

WY H & V added a Fundraising/Grant Specialist to the team. The 2nd Annual Night 5K is in the works.  Hearing Aid legislation did not pass, but the state funded a Hearing Aid program to cover hearing aids for children.

Georgia:

GA H & V is gearing up for the Hands & Voices Conference to be held in the fall and has just submitted the GBYS application.  The chapter is participating in a number of projects, coalitions, and initiatives: Let Georgia Hear (insurance coverage for children’s hearing aids), Georgia Pathway to Language and Literacy, UNHSI State Stakeholders’ Group.

Manitoba:

February 26, 2014 the Manitoba chapter launched!

These are just some of the updates we’ve highlighted from our recent GBYS/ H &V Chapters meeting. We will share more updates in future posts. It is truly exciting to see each program in action!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Finding the Balance ~ Helen Cotton Leiser

March 5, 2014

helen and kids

The Hands & Voices annual Leadership Conference is always my safe haven. One year’s theme, “Finding the Balance Within” was exactly what I needed. In my role with Hands &Voices, I have spoken to over 200 moms around Oregon.  I have seen marriages stressed, mothers feeling overwhelmed and siblings trying to figure out where they fit in with all the appointments and worry associated with having a sibling with hearing loss.

Studies show that 95% of parents of deaf/hard of hearing children have no history or experience with hearing loss. Having a newborn in itself can be stressful. When your newborn is diagnosed with hearing loss or deaf+, the diagnosis can challenge many areas of your life and create a strain on relationships, marriages, and can send parents spiraling in all directions as they face this new reality.

Parents of school aged kiddos face their own levels of stressors as they ensure the educational and  emotional health of their child. I know three sets of parents who have had to leave Oregon to find the right school for their child.

Have more fun… it’s what I have been telling myself for the last 8 months, and what I heard in the opening plenery of the Leadership Conference. I know I need to pick up my camera and do what I love to do. I know I need to spend more time with my friends. I see that many of us parents are not feeding our souls; we are not having fun.

Getting back to who we are, not our labels, not our IEP challenges; but who we are, our being. It’s really hard to have fun and be ourselves, especially in the beginning of the process. I have spoken with parents of school aged kiddos who feel if they let their guard down or relax for one moment, their child’s communication will falter, their school life could suffer or their emotional well-being will dwindle.

We forget that if we don’t take care of ourselves first, if we don’t get back to who we are, the individual within, we won’t have what we need to advocate and support our child. We also forget to ask for help. Our Guide By Your Side program and chapters are here to assist you in supporting your child in school, at home, and on the playground! Those of you new to the process don’t know what you should know and you certainly don’t know where you need help. Parents of school-aged kiddos have been attending IEP meetings for awhile and may not consider the benefits of having someone else at the table or just having another (trained) parent to talk to.

What do you need that you don’t have? What would a balanced life look like to you? How do you feel when you lay down at night? If you don’t know then tonight when you go to bed take a deep breath and listen. That is your authentic feeling. Do you need to make any changes?!

So as spring slowly approached and the days lengthen, we hope that you also slow down, set aside your worries and challenges and enjoy the warmth of the sun that is just around the corner! Watching kids play outside and in the pool is a great reminder to get a little more ‘child-like’ and have fun. So do that. Go jump in a pool, run through some sprinklers, lay in the grass looking up at the stars, and eat a smore.  It’s time for all of us to recharge and remember that we are parents first; parents to kids who just want to be kids.

 

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