Providing Support? 

If you are an individual who is providing family-to-family support, and/or a program considering implementation of family-to-family support, the following are different models of family-to-family support programming, and/or qualities that those providing such support should possess.

Models of Family-to-Family Support

Hands & Voices

Hands & Voices Family to Family Support  - http://handsandvoices.org/index.htm

At Hands & Voices there are three basic components provided to families through our parent-to-parent organizational system: emotional support, information and resource dissemination, and modeling by other families. Supported families are emotionally healthy and ready to face their responsibilities. Informed families have the resources to make good decisions, take ownership of their decisions, and understand why they are doing what they are doing.

Additionally, Hands & Voices believes the following components should be in place for those providing parent-to-parent support:

For more information on Hands & Voices Chapters -
Contact  chaptersupport@handsandvoices.org
For more information on the Hands & Voices Guide By Your Side program -
Contact  gbys@handsandvoices.org

For other Family to Family Support Programs/Resources in your state or Territories, explore:

Coming Soon: A full listing of each state/territory level funded family based organization(s) partnering via their state’s EHDI program.

Where Families Find Support

Family’s skills, strategies, and advocacy tools are increased by being exposed to a variety of family support opportunities included in the model below.  It is important for families who are providing support to be aware of their own role within the context of other platforms from which families should be receiving support.  

Revised Conceptual Framework of Parent to Parent Support for Parents of Children who are Deaf or Hard of Hearing: A Modified Delphi Study

In a literature review of 39 peer-reviewed articles published from 2000 to 2014, Henderson, Johnson and Moodie (2014) describe the importance of parent-to-parent support in helping to guide parents on how to advocate on behalf of their child and access special education and other services. “Peer parental support systems boost parental morale and confidence when looking toward the future at points of transition.  Parents are better positioned to support the goals chosen by the child through meaningful collaboration.”  The findings of this dual-stage scoping review and electronic Delphi study provide a conceptual framework that defines the vital contribution of parents in Early Hearing Detection and Intervention programs that will be a useful addition to these programs.
http://aja.pubs.asha.org/article.aspx?articleid=1915171

The Supplement to the JCIH 2007 Position Statement: Principles and Guidelines for Early Intervention after Confirmation That a Child Is Deaf or Hard of Hearing
 can be found here: http://pediatrics.aappublications.org/content/131/4/e1324 
This Early Intervention (EI) services document was drafted by teams of professionals with extensive expertise in EI programs for children who are deaf or hard of hearing and their families. The team used literature searches, existing systematic reviews, and recent professional consensus statements to develop a set of guidelines. These comprehensive guidelines help EHDI programs establish strong Early Intervention systems with expertise to meet the needs of children who are deaf or hard of hearing. For the infant or young child who is D/HH to reach his or her full potential, families and professionals must work together quickly to build carefully designed individualized intervention in a family’s home and community. This includes engaging service providers with optimal knowledge and skill levels that fit the diverse needs of this population.

A Parent’s guide to the JCIH Supplement.  This Parent’s Guide was developed by the Early Hearing Detection and Intervention (EHDI) Parent to Parent Committee, which is made up of parents of children who are deaf or hard of hearing as well as a diverse group of professionals who support families in EI and beyond.

For more resources to share with families, explore the other sections of the FL3 Website sections and/or click here